Milo Browne, from North Shields, requires constant care from his parents
The youngster is unable to sit on his own without being fully supported
He is being treated for M3BHA – which only affects 9 people worldwide
But medics say his disorder is much more severe and have labelled him a sufferer of ‘Milo’s Condition’
A four-year-old boy suffers from a condition so rare that doctors have named it after the youngster.
Milo Browne, from North Shields, needs constant care from his parents and is unable to sit without being fully supported.
He will never have the ability to crawl, stand or walk and he is fed via a tube into his bowel as his stomach is too sensitive to eat normally.
But medics have labelled him as a sufferer of ‘Milo’s Condition’ because they have never seen anything like it before.
Milo Browne needs constant care from his parents and is unable to sit without being fully supported. He will never have the ability to crawl, stand or walk and is fed via a tube into his bowel (pictured
Milo Browne needs constant care from his parents and is unable to sit without being fully supported. He will never have the ability to crawl, stand or walk and is fed via a tube into his bowel Following several years of fundraising, the family have spent £19,000 on transforming their home with new gadgets to help Milo take a break from the multiple hospital visits he has to endure.
His mother Laura Davidson, 32, said: ‘It’s been absolutely life-changing because there are a lot of days when he’s not well and we don’t manage to get out.
When he was just a day old, Ms Davidson and her partner Stephen Browne became concerned that something was wrong with Milo.
They noticed his arms and legs were ‘very jerky’ – but assumed it may have been down to shock and that his movements would settle down.
But medics have labelled him as a sufferer of ‘Milo’s Condition’ because they have never seen anything like it before
But medics have labelled him as a sufferer of ‘Milo’s Condition’ because they have never seen anything like it before.
But they did not, and throughout his short life Milo has undergone many scans, tests and examinations at hospital to rule out a number of medical problems, including chromosome disorders.
Milo is now being treated for a condition known only as M3BHA – which has only ever affected eight other people in the world.
But doctors say his is much more severe and shows evidence of a mutation that has never been previously seen.
Physiotherapists have said because Milo hasn’t made any significant improvements with his head control, and as he is now getting bigger, it’s only going to get harder.
Doctors believe he has M3BHA – which has only ever affected eight other people in the world. But they say his condition is much more severe and shows evidence of a mutation that has never been previously seen
Doctors believe he has M3BHA – which has only ever affected eight other people in the world. But they say his condition is much more severe and shows evidence of a mutation that has never been previously seen
Following several years of fundraising, the family have spent £19,000 on transforming their home with new gadgets to help Milo take a break from the multiple hospital visits he has to endure (pictured with his mother and father Stephen Browne)
Following several years of fundraising, the family have spent £19,000 on transforming their home with new gadgets to help Milo take a break from the multiple hospital visits he has to endure (pictured with his mother and father Stephen Browne)
Now the family have installed fibreoptic lights, a projector and specialist play equipment in a bid to give Milo the chance to relax.
They are now trying to raise money to buy sensory equipment that can help other families.
Ms Davidson said: ‘After seeing how much Milo gets out of his, we want to raise as much as we can to help other children in the same position.
Now Ms Browne’s devotion to her young son has been recognised with a nomination in the form of ‘Champion Mum’.
She was nominated for the award by friend Laura Linsdell, who said: ‘It’s a constant worry to them about if Milo is going to be OK, they worry when it’s cold that he will catch a bad cold and end up in hospital.
Throughout his short life Milo has undergone many scans, tests and examinations at hospital to rule out a number of medical problems, including chromosome disorders
Throughout his short life Milo has undergone many scans, tests and examinations at hospital to rule out a number of medical problems, including chromosome disorders
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